Illustrative scenario · Pharma & biotech
A patient support program that also captures real-world data
A pharma company runs a patient support program for an inflammatory condition.
Challenge
The scenario's data and workflow challenges
- The program offered support but captured little about patient experience.
- Flares between appointments were reported weeks later, if at all.
Data sources
Data sources in the illustrative workflow
- Flare and symptom diaries
- Treatment adherence check-ins
- Fatigue and function PROs
Approach
The proposed collection and integration approach
1
Support app
Patients received reminders, education and a flare diary.
2
Consented data
Patients chose whether their data contributed to research.
3
Insight
Medical affairs reviewed aggregated trends.
Workflow
- Program enrollment
- Consent choice
- Daily support
- Flare diary
- Aggregated insight
Outputs
Illustrative outputs for each team
- Patients
- Support and a record of their own flares
- Medical affairs
- Real-world insight on flares and adherence
- Program team
- Engagement view
Outcomes
Results, once confirmed
We only publish measured outcomes that have been confirmed and approved.
- Outcomes are reviewed with the program and published only after confirmation.
- Engagement tracked for review
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